多點了解血友病 多點關愛
2015/04/22 08:41:20 網誌分類: 生活
血友病是一種遺傳性血液凝固異常的疾病，令患者流血時難以凝血，關節容易出血引致腫痛，影響活動，因此須注射凝血因子作補充治療。現時病友會每周進行兩至三次的預防性注射，減低出血頻率。其實只要個人及家庭護理得宜，配合藥物治療和醫護團隊支持，病友與一般人無異。
香港血友病會於二○○六年由一群病友、病友家屬、醫生及熱心人士等創立，來年將踏入十周年，作為病人與醫護團隊的橋樑，藉着舉辦教育講座、病友分享會及小組學習等，讓病友能夠「健康、獨立、快樂及自主」地成長，好好地與血友病相處。
血友病會將持續引進更多疾病資訊，促進患者與醫護溝通交流。同時也希望能從國外引進安全性較高及藥效較長的基因重組及長效凝血因子，讓患者有選擇機會，改善生活質素。在剛過去的四月十七日為國際血友病日，主題是「BuildingaFamilyofSupport」，期望大眾能認識、參與及支持更多血友病患者，讓這片土地更溫暖！
香港血友病會林漢威
Good health. Good luck. Our world is full of diseases, disappointment, worries and sufferings because we rebelled against God in our past. Jesus, God himself, suffered and died for us to pay for our sins. God loves and cherishes us with the greatest love. He will soon ｃ ｒｅａｔｅ a new and better world with lasting peace and happiness for us. God's new world is near. Repent. Repent means changing our mind about the present world. It's not the place nor time for true, continual happiness. Help your families and people you meet everyday within your means. Know God. Read the Gospel. Pray to him. He has helped me a lot. He can help you, too.